{"id":8933,"date":"2017-03-06T06:00:37","date_gmt":"2017-03-06T11:00:37","guid":{"rendered":"http:\/\/ben-sternke-live.prev17.rmkr.net\/?p=8933"},"modified":"2025-03-07T18:54:59","modified_gmt":"2025-03-07T22:54:59","slug":"down-syndrome-discipleship","status":"publish","type":"post","link":"https:\/\/gravitycommons.com\/es\/down-syndrome-discipleship\/","title":{"rendered":"How Down Syndrome Is Teaching Me About Discipleship"},"content":{"rendered":"<p>My wife and I have three boys\u2014a seven-year old, five year-old, and a two-and-a-half year-old.<\/p>\n<p>Our youngest, Griffin, is the star of our family. Most arguments in our family typically center on who\u2019s getting to hang out with Griffin. Griffin\u2019s sort of a big deal. He also rocks an extra chromosome. Griffin has Down syndrome.<\/p>\n<p><!--more-->We had no idea that Griffin had Down syndrome before he was born. His diagnosis came as a total surprise.<\/p>\n<p>Our response was a mixture of celebration and fright. We were thrilled to welcome Griffin into the world and our family, but scared about what the future might hold. Health problems, educational opportunities, financial concerns were all trigger points.<\/p>\n<p>And while attending to Griffin\u2019s Down syndrome has been full of uncertainty and feelings of inadequacy, <strong>no one has taught me more about discipleship than Griffin.<\/strong><\/p>\n<h2>Intentionality is key<\/h2>\n<p>With Griffin pretty much everything developmental is delayed. To assist Griffin with his development requires a high degree of intentionality.<\/p>\n<p>Griffin has several different therapists that he sees regularly to help him with his gross and fine motor skills, his speech, and socialization. For the past year Griffin has attended \u2018baby yoga\u2019 weekly to help build his core strength.<\/p>\n<p>And in between all of these therapy sessions and yoga classes, we have therapy exercises we do with Griffin at home multiple times each day. The things \u201cnormal kids\u201d figure out on their own, Griffin needs help with.<\/p>\n<p>As just one example, before Griffin was willing to stand up, we had to apply pressure to his feet using our hands for several months so that he would become aware that his feet were designed for standing.<\/p>\n<p>There are probably about 100 more examples just like this. The point is that in order for Griffin to develop, a high degree of intentionality is required on a daily basis. It\u2019s a non-negotiable.<\/p>\n<p><strong>The same is true for our discipleship. Intentionality is a non-negotiable.<\/strong><\/p>\n<p>Borrowing from Dallas Willard, <em>discipleship is the intentional process of becoming more like Jesus.\u00a0<\/em>Notice the word <em>intentional<\/em>.<\/p>\n<p>In other words, discipleship won\u2019t happen by accident. People don\u2019t just fall into spiritual growth. Spiritual formation isn\u2019t a fluke. It requires intentionality, consistency, and regular attention.<\/p>\n<p>Willard also famously said, <em>non-discipleship is the elephant in the church.<\/em><\/p>\n<p>At least part of the reason this elephant in the church exists is because we lack intentionality. When it comes to discipleship there is a spectrum of both <em>organic<\/em> and <em>organized<\/em>, both <em>spontaneous<\/em> and <em>structured<\/em>.<\/p>\n<p>If our discipleship only takes place in organized and structured environments, we risk compartmentalizing following Jesus from our everyday life. But if our discipleship practices only find expression in the organic and spontaneous, then growth will be limited.<\/p>\n<p>I\u2019m convinced that the vast majority of people <em>already<\/em> know other people they could be investing in spiritually within their existing relational space. It\u2019s simply a matter of intentionality.<\/p>\n<h2>Patience is essential<\/h2>\n<p>Despite all our intentionality and therapy, Griffin is way behind other kids.<\/p>\n<p>Griffin is two-and-a-half years old and he\u2019s not walking yet. He just started cruising along furniture while standing. Griffin doesn\u2019t know how to feed himself yet. He\u2019s just learning how to bring the spoon to his mouth and sip from a straw. Griffin has limited communication. He knows a few signs and can say <em>atta <\/em>(water) and <em>alnone <\/em>(all done).<\/p>\n<p><strong>Confession: I\u2019m not naturally a patient person.<\/strong> The fact that this is the <em>first<\/em> descriptor of love Paul uses in 1 Corinthians 13 has always bugged me. But Griffin has taught me to embrace the freedom of patience.<\/p>\n<p>While I just described how far behind Griffin is compared to other children, I\u2019ve learned not to view him this way. I no longer view Griffin from the vantage point of where he <em>should be<\/em>, but simply celebrate where he is.<\/p>\n<p><strong>Effective discipleship requires that we attend to people where they actually are\u2014not where we think they should be.<\/strong><\/p>\n<p>The reason is because that\u2019s how God relates to us. We often say in our discipleship training, <em>God is so real he will meet you where you really are<\/em>. Not only do our <em>shoulds<\/em> (where we think we should be) get in the way of us approaching God honestly, but we can also <em>should<\/em> on other people by projecting growth expectations and maturation milestones on them.<\/p>\n<p>In my experience, demanding people to be further along only produces frustration within me, tension within the relationship, and resistance from the other person.<\/p>\n<p>Of course, exercising patience doesn\u2019t negate the necessity of challenge.<\/p>\n<p>Being patient doesn&#8217;t mean that I don\u2019t invite people to make forward progress. But the <em>way<\/em> I invite people to grow starts with where they actually are and then involves surrendering the outcome of their response and effort to God.<\/p>\n<h2>Not all growth is\u00a0obvious<\/h2>\n<p>I\u2019ve noticed that Griffin\u2019s growth seems to go in spurts. There will be weeks where it seems like he\u2019s not advancing at all and then all of a sudden he\u2019ll reach three huge milestones in two days!<\/p>\n<p>One day my wife Josie named this observation with Griffin\u2019s primary therapist. Her response, as someone who works with children with special needs daily, was surprising.\u00a0 \u201cOh yes,\u201d she said, \u201cSome weeks <em>you<\/em> will notice more significant breakthrough for Griffin, but <em>I <\/em>notice things you don\u2019t. Every time I visit, I see Griffin doing new things.\u201d<\/p>\n<p>Now whenever we are in a stage where nothing <em>seems<\/em> to be happening developmentally for Griffin, we remind ourselves that lots is happening that we can\u2019t fully see.<\/p>\n<p>The same is true when discipling people.<\/p>\n<p>People are often experiencing growth that is unobservable to the naked eye. On countless occasions, when discipling others, nothing seems to be happening on the surface and then all of a sudden some huge breakthrough happens.<\/p>\n<p>It\u2019s only as I look back that I can then see all sorts of subtle things that were happening along the way that contributed to the growth spurt that I hadn\u2019t noticed.<\/p>\n<p>We often get deflated when those we are discipling aren\u2019t moving up and to the right!\u00a0 But part of exercising patience is trusting that not all growth is visible.\u00a0 God is often on the move in ways that far surpass our comprehension.<\/p>\n<h2>You can\u2019t take people where they don\u2019t want to go<\/h2>\n<p>Recently, we hit a wall when attempting to teach Griffin how to use a spoon.<\/p>\n<p>Our therapist recommended using a plastic strap that attached to the spoon and wrapped around Griffin\u2019s hand to assist him in holding the spoon. The strap proved to be a total fail!<\/p>\n<p>Some people have this false impression that people with Down syndrome are always happy.\u00a0 I can assure you this isn\u2019t the case! Griffin experiences the full range of emotions that every other child experiences. He also expresses his emotions just like other children\u2014with well-timed tantrums!<\/p>\n<p>Griffin hated the strap and began to protest the strap with a tantrum at pretty much every feeding. Our first inclination was to force Griffin to use the strap out of fear that he\u2019d never learn how to feed himself. But after three days of tantrums, we realized our efforts were proving counter-productive.<\/p>\n<p><strong>Sometimes those you are discipling will stall out because they are experiencing <em>imaginative gridlock<\/em>.<\/strong><\/p>\n<p>They genuinely <em>want to<\/em> do something, but simply don\u2019t know <em>how to<\/em> do it. When this happens, especially if their &#8220;stuckness&#8221; centers on an area of competency rather than character, the key is to give them tools and resources to expand their <em>know how<\/em>.<\/p>\n<p>But not everyone is stuck because they don\u2019t know how to do something.<strong> Sometimes those you are discipling will stall out because they are experiencing <em>volitional gridlock<\/em>.<\/strong><\/p>\n<p>This is when a person actually knows <em>how to<\/em> do something, but simply doesn\u2019t <em>want to <\/em>do it. When this happens, it\u2019s tempting to employ all kinds of pressure tactics to get that person to engage. Most commonly, we try to guilt, fear, or shame people into action. Such tactics never work.<\/p>\n<p><strong>These are the first red-letter words in the gospel of John:\u00a0<em>&#8220;What do you want?&#8221;<\/em><\/strong><\/p>\n<p>I\u2019m convinced that most interactions Jesus had with people ultimately aimed at helping people own their answer to that question. Jesus refused to force people where they weren\u2019t willing to go. Instead, he simply invited people to follow him and then helped them own their answer to that question.<\/p>\n<h2>Questions for Reflection:<\/h2>\n<ol>\n<li>How are you <em>intentionally<\/em> investing in disciple-making right now?<\/li>\n<li>In what ways are you tempted to apply force when disciple-making?<\/li>\n<li>How is valuing <em>patience<\/em> and <em>invisible<\/em> <em>growth<\/em> freeing for you?<\/li>\n<\/ol>\n<p>Leave a comment below to join the discussion! And use the form below to sign up to get new posts and other free content in your inbox every sometimes.<\/p>","protected":false},"excerpt":{"rendered":"<p>Having a child with down syndrome was a surprise, but it&#8217;s teaching us a lot about how discipleship really works.<\/p>","protected":false},"author":8,"featured_media":30165,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"episode_type":"","audio_file":"","podmotor_file_id":"","podmotor_episode_id":"","cover_image":"","cover_image_id":"","duration":"","filesize":"","filesize_raw":"","date_recorded":"","explicit":"","block":"","itunes_episode_number":"","itunes_title":"","itunes_season_number":"","itunes_episode_type":"","footnotes":""},"categories":[8],"tags":[],"class_list":["post-8933","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-make-disciples"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.3 - 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